Expanded ALS drug coverage to support British Columbians
As of Wednesday, Aug. 19, 2020, the Ministry of Health will provide coverage of edaravone, or Radicava, for patients living with amyotrophic lateral sclerosis (ALS, commonly called Lou Gehrig’s disease) upon conclusion of negotiations with its manufacturer.
In British Columbia, approximately 480 people have been diagnosed with ALS. ALS is a fatal neurodegenerative disease where patients typically become unable to move, speak, swallow and breathe as the condition progresses. In one clinical trial, edaravone has helped slow the worsening of this disease in a select ALS patient subpopulation.
Edaravone has been under pan-Canadian Pharmaceutical Alliance (pCPA) negotiation since September 2019. The negotiations between the manufacturer, Mitsubishi Tanabe Pharma Corporation, and the pCPA meet B.C.’s cost-related mandate.
“The offer from Mitsubishi Tanabe Pharma Corporation meets British Columbia’s criteria, which is great news for patients suffering from this deadly disease,” said Adrian Dix, Minister of Health. “B.C. will continue to support ALS patients through its expansion of coverage of life-changing drugs and research funding to improve the lives of British Columbians.”
It is expected that between 66 to 183 patients will benefit from the coverage in the first year. The list price of edaravone is around $120,000 per patient, per year.
To further support patients living with ALS throughout the province, the ALS Society of British Columbia has raised $1 million and the B.C. government has provided $1 million to match that effort.
“The work of the ALS Society of BC helps provide care to patients, supports clinical trials and research,” Dix said. “This organization has done extraordinary things to enable patients to participate in their care, prolong survival, and improve well-being, and we are happy to support them in that great work.”
The combined $2 million will be used over the next five years to develop an ALS centre of excellence in Vancouver that will not only serve patients in the Vancouver area, but also provincewide through mobile clinics.
This investment will:
- advance patient care for ALS in British Columbia;
- further improve patient outcomes; and
- help attract dedicated physicians and neurologists that are critically needed over the coming years.
Addressing the costs of prescription drugs is a shared priority between government and the BC Green Party caucus, and is part of the Confidence and Supply Agreement.
For more information on drug coverage in B.C., visit: https://www2.gov.bc.ca/gov/content/health/health-drug-coverage/pharmacare-for-bc-residents/what-we-cover/drug-coverage
A backgrounder follows.
Sun, Apr 18, 2021 at 12:43 pm - Bill Sundhu posted on their blog: If you don’t have $20 million, relax. A wealth tax won’t hurt you. »
Fri, Apr 16, 2021 at 9:00 am - Doug Smith posted on their blog: On the Lower Rose Trails
Thu, Apr 15, 2021 at 1:32 pm - David Suzuki posted on their blog: It’s time to stop logging old-growth forests
Tue, Apr 13, 2021 at 9:00 am - Doug Smith posted on their blog: Dewdrop Ridge – Battle Bluff Route
Sat, Apr 10, 2021 at 10:24 pm - Arjun Singh posted on their blog: Late evening musings on one of Kamloops’ Council’s critical responsibilities…
Sat, Apr 10, 2021 at 9:00 am - Doug Smith posted on their blog: Tranquille Hills Hike – Kamloops Trails
Wed, Apr 7, 2021 at 8:30 am - Doug Smith posted on their blog: On the Savona to Sabiston Trail in March
Tue, Apr 6, 2021 at 3:33 pm - David Suzuki posted on their blog: Protecting the planet can prevent pandemics
Sun, Apr 4, 2021 at 8:00 am - Doug Smith posted on their blog: Hiking Rabbit Island in March
Fri Apr 9 to Sat May 8 KSO Presents: Charlie Parker w/ Strings
Fri Apr 23 to Sat May 22 KSO Presents: Voilà Viola!
Sun Apr 25 A Celebration with ZZ Top (New Date)
Thu Apr 29 Artist Coffee – Virtual Meet Up
Wed May 5 Renovate Smart Kamloops Virtual Home Energy Performance Workshop
Sat May 15 A Virtual Choir Spring Fling
Thu May 27 Artist Coffee – Virtual Meet Up
Sat May 29 Amadeus
Tue Jun 8 Renovate Smart Kamloops Virtual Home Energy Performance Workshop
Sat Jun 12 New Music for Piano and Viola
Thu Jun 24 Artist Coffee – Virtual Meet Up
Thu Jul 1 to Tue Aug 31 Music in the Park
Wed Jul 14 Renovate Smart Kamloops Virtual Home Energy Performance Workshop
Thu Jul 29 Artist Coffee – Virtual Meet Up