Canadian Organization for Rare Disorders holds a news conference – November 25, 2025

Canadian Organization for Rare Disorders holds a news conference – November 25, 2025

November 25, 2025 at 7:01 am  Federal, Politics, Video



Representatives from the Canadian Organization for Rare Disorders (CORD) hold a news conference in Ottawa to discuss Canada’s rare disease strategy.

Speaking with reporters are Durhane Wong-Rieger (president and CEO of CORD), Jida El Hajjar (chair of CORD’s board of directors and executive director of Loeys-Dietz Syndrome Foundation Canada), Rebeccah Marsh (senior director of strategy, innovation, and outreach at the Institute of Health Economics), and Jennifer Adams (an Ottawa family physician and primary hyperoxaluria advocate).

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