Canadian Organization for Rare Disorders holds a news conference – November 25, 2025

Canadian Organization for Rare Disorders holds a news conference – November 25, 2025

November 25, 2025 at 7:01 am  Federal, Politics, Video



Representatives from the Canadian Organization for Rare Disorders (CORD) hold a news conference in Ottawa to discuss Canada’s rare disease strategy.

Speaking with reporters are Durhane Wong-Rieger (president and CEO of CORD), Jida El Hajjar (chair of CORD’s board of directors and executive director of Loeys-Dietz Syndrome Foundation Canada), Rebeccah Marsh (senior director of strategy, innovation, and outreach at the Institute of Health Economics), and Jennifer Adams (an Ottawa family physician and primary hyperoxaluria advocate).

source

No conversations yet

Activity Stream

Fri, Jul 10, 2026 at 12:53 pm – Kamloops Film Society posted on their blog: Sensory Friendly Screenings – The Kamloops Film Society
Fri, Jul 10, 2026 at 12:13 pm – Kamloops Film Society posted on their blog: SUMMER CAMP! – The Kamloops Film Society
Thu, Jul 9, 2026 at 1:26 pm – Kamloops Film Society posted on their blog: Cinema Passport | JULY – The Kamloops Film Society
Thu, Jul 9, 2026 at 8:00 am – David Suzuki posted on their blog: As the world burns, the powerful deny and delay
Tue, Jul 7, 2026 at 12:08 pm – Kamloops Film Society posted on their blog: Free Family Flick – The NeverEnding Story – The Kamloops Film Society
Tue, Jul 7, 2026 at 11:44 am – Kamloops Film Society posted on their blog:  Summer Camp!  – The Kamloops Film Society
Thu, Jul 2, 2026 at 8:00 am – David Suzuki posted on their blog: What the fungal networks can teach us
Thu, Jun 25, 2026 at 8:00 am – David Suzuki posted on their blog: LNG poses risky bet for pension funds
Thu, Jun 18, 2026 at 8:00 am – David Suzuki posted on their blog: Attacks on energy transition are attacks on workers
Mon, Jun 15, 2026 at 5:08 pm – Kamloops Film Society posted on their blog: Dusty, Broke N ’ Broken Hearted – Thursday Film Series July 9th – 30th – The Kamloops Film Society
Full Stream
No items found